Im not sure but my sister died of Marfan syndrom at 32 years of age. She looked very much like children with primorial dwarfism except she was tall. I know marfan affects the filibrin gene. I wonder if anyone is checking for some type of connection? My sister left two children behind. I hope Brandon gets a longer life.
Primordial Dwarfism- the little girl with her father and her white jacket. What a little darling. How cute. How old is she and what are their life expentcies?
3 Comments
January 26, 2009 at 8:12 pm
Im not sure but my sister died of Marfan syndrom at 32 years of age. She looked very much like children with primorial dwarfism except she was tall. I know marfan affects the filibrin gene. I wonder if anyone is checking for some type of connection? My sister left two children behind. I hope Brandon gets a longer life.
August 17, 2009 at 2:53 pm
hi im lesley i saw kennady on tlc i think she is cute and amazing how is she doing and how old is she now
September 28, 2009 at 1:53 pm
Primordial Dwarfism- the little girl with her father and her white jacket. What a little darling. How cute. How old is she and what are their life expentcies?